Research Projects

PREVENTION PLATFORM

Building on the PERSPECTIVE study, this study is funded by the Ministère de l'Économie, de la Science et de l'Innovation and focuses on supporting women with e-health tools to use during the breast cancer genetic testing and follow up process. In collaboration with Dr. Jacques Simard and international colleagues, Dr. Loiselle’s research lab is developing and testing an interactive platform that allows women to follow-up screening recommendations, information, appointment tracking, and additional person-centered services.

Sponsors

ONCO PERSONA APP STUDY


"Being known" by the health care team can significantly improve a patient's health care experience, health behavior, and health-related outcomes. “Being known” refers to patients’ perceptions that there is a human connection with healthcare providers that includes personalization of care according to patients’ health status, unique needs, beliefs and values. As of now, no clear strategies to improve patients' feelings of "being known" have been proposed. Health information technologies are promising to address this gap. Our research team has recently collaborated with IT experts to design an e-health application that serves to provide crucial patients’ information including their current health worries, and preferences for information and decision making so that health care providers can optimally tailor their interventions to patients' needs. The study will test the newly developed App and explore the extent to which it enhances the patient experience while optimizing patients-health care providers' interactions.

For more information about this study, please contact:
Jacqueline Vachon, M.Sc.
loiselle-research@mcgill.ca
(514) 398-8977

BELONG: BEATING CANCER TOGETHER


This study begins to test a new online health community application called BELONG - designed as a platform to improve the overall patient experience with cancer and care. More specifically, BELONG assists individuals with cancer to meet their information and support needs, promote communication and shared treatment decision-making, track their own cancer journey and guide them to navigate the complexities of the health care system. The application is available for use on mobile devices and tablets, such as smart phones and iPads. This pilot particularly focuses on the experience of women with gynecological cancer and the views of the multidisciplinary team.

News broadcast: "Israeli startup fights against cancer"
http://www.israelnationalnews.com/News/News.aspx/230331

For more information about this study, please contact:
Dr. Carmen G. Loiselle or Saima Ahmed, BSc, MSc candidate
loiselle-research@mcgill.ca
saima.ahmed@jgh.mcgill.ca
(514) 398-8977

Sponsors

"THE POWER OF ME, THE POWER OF WE" DOCUMENTARY


Paradoxically, the experience of young adults living with advanced cancer can be both very challenging and a catalyst for personal growth. The complexity of their experience is due, in part, to their unique physical, psychological, developmental, and social needs. To this end, Carmen Loiselle and Hope & Cope (Suzanne O’Brien) embarked on an innovative documentary film project to document their experience. The team wishes to take this documentary to various media sources, to raise awareness of young adults’ unique experiences with advanced cancer and the health care system, as well as fundraise to support young adults with cancer services provided through Hope & Cope.

Full documentary (in English): https://www.youtube.com/watch?v=_RrZrLeKrRk&t=38s

English press release: https://www.mcgill.ca/nursing/article/empowerment-coping-and-closure-worldcancerday2019-legacy-project-documentary-shares-perspectives

For more information about this documentary, please contact:
Dr. Carmen G. Loiselle
loiselle-research@mcgill.ca
(514) 398-8977

Sponsors

PATIENTS' PREFERENCES IN CANCER CARE AND THE PATIENT EXPERIENCE SURVEY

The Rossy Cancer Network has implemented an Ambulatory Outpatient Satisfaction Survey (AOPSS) program for cancer patients across three McGill-affiliated hospitals: McGill University Health Centre, Jewish General Hospital, and St. Mary’s Hospital Center. Dr. Loiselle has had the opportunity to add questions related to her program of research on patients’ preferences for cancer information and services. Following the administration of over 4,000 patient experience surveys by the RCN, Dr. Loiselle conducted data analysis on the assessment of patient satisfaction in relation to patient information preferences (Loiselle, 2019) and another manuscript is underway that evaluates patient satisfaction based on whether they were assigned a nurse pivot.

Sponsors

TREATMENT DECISION MAKING AMONG OLDER PEOPLE WITH COLORECTAL CANCER

For older adults, variation in health, functional, and social status; increasing tension between quality and quantity of life; and lack of research present important challenges in cancer treatment decision making. Recent evidence supports patient engagement in treatment decision making; however, little is known about these evolving processes from the perspective of OAs.  In this longitudinal qualitative study, men and women aged 70 years and older, who had received a colorectal cancer diagnosis, were interviewed and followed through their treatment trajectory.  The in-depth understanding gained through this study will provide insight into age-based disparities in care and inform the development of supportive interventions.

For more information about this study, please contact:
Fay Strohschein, RN, MSc(A), PhD candidate or Dr. Carmen G. Loiselle
strohschein@mail.mcgill.ca
loiselle-research@mcgill.ca

Sponsors

LOISELLELAB RESEARCH CONTACT LIST

This project, funded by the Christine and Herschel Victor/Hope & Cope Psychosocial Oncology Research Chair, aims at creating a contact list for individuals who are interested in being notified of future LoiselleLab studies. With 87.5% of participants in previous studies expressing their interest to be contacted about new cancer-related studies, this electronic research contact list database is an ideal system to improve participant recruitment efficiency and communication.

For more information about this study, please contact:
Jacqueline Vachon, MSc
loiselle-research@mcgill.ca
(514) 398-8977

ON-BOARD PROJECT

The ONcology - Bolstering Oral Agent Reporting of Distress (ON-BOARD) study seeks to implement and test a sustainable distress support program for unmet psychosocial needs of individuals with cancer receiving oral chemotherapy treatment. Participants will be offered information and support based on these needs. The primary goal of the study is to document how patient distress and patient-reported outcomes (PROs) may vary over time as a function of being exposed to low cost / sustainable supportive interventions.

For more information about this study, please contact:
Saima Ahmed, Doctoral Student ou Jacqueline Vachon, MSc
loiselle-research@mcgill.ca
(514) 398-8977

Sponsors

COPING TOGETHER

Adaptation of Coping Together, self-directed coping skills training manuals for patients and caregivers in the context of hematopoietic stem cell transplantation

PATIENT-INFORMAL-CAREGIVER STUDY

The patient-informal-caregiver study seeks to better understand patient-caregiver dynamics in the context of cancer treatment when the informal caregiver works in the health care field. A qualitative phenomenological approach will be used to explore the experience of informal caregivers with interviews to allow participants to report on their personal experiences. Results will contribute to our understanding of the experiences of health care professionals in their informal caregiver roles. If corroborated, findings should inform the development of supportive interventions for the unique dual role of being a healthcare provider caring for a relative with cancer.

For more information about this study, please contact:
Ariane Santerre-Theil, MSc or Jacqueline Vachon, MSc
ariane.santerre-theil@mail.mcgill.ca or loiselle-research@mcgill.ca
(514) 398-8977

TEAM EFFECTIVENESS AND PATIENTS’ EXPERIENCES WITH CANCER CARE

As patient care in oncology becomes more complex, challenges of working effectively in teams are considerable. In this project, we aim to examine the relationships between healthcare team functioning and patients’ experiences with cancer care and begin to document if a team effectiveness predicts positive health-related outcomes in patients with cancer.

For more information about this study, please contact:
Samar Attieh, Doctoral Student or Jacqueline Vachon, MSc
loiselle-research@mcgill.ca
(514) 398-8977


Past Projects (past five years)

BREAST & BONE HEALTH PROJECT


Some women with breast cancer are at higher risk for osteoporosis, bone fragility, and fracture due to the nature of their cancer treatment. Hope & Cope and the Segal Cancer Centre spearheaded a program dedicated to promoting bone health in breast cancer. This initiative was possible thanks to a grant (2014-2018) from the Quebec Breast Cancer Foundation (rubanrose.org). The program was a team effort with the co-leadership of a nurse and a physiotherapist working together to identify, screen, and support women through research-informed activities. Principal investigator, Dr. Loiselle and her team (Lapointe, J., Dalzell, M. A., O'Brien, S., Lau, G.J. & Ibrahim, M.) documented how awareness raising, education, exercise, nutrition, and lifestyle modifications can be integrated into current breast cancer treatment practices. The culmination of these efforts was a cost-effective comprehensive bone health toolkit that can be easily transferred to other clinical settings in Quebec.

For more information about this program: www.breastandbonehealth.ca

Sponsors

SUSTAINABLE DISTRESS SCREENING IMPLEMENTATION STUDY

The overall goal of this pilot study was to determine the implementation potential of a volunteer-based electronic distress screening and psychosocial support system for patients newly diagnosed with cancer. The main study objectives were to (1) document the feasibility, usability, and acceptability of a volunteer-based e-distress screening and support system to patients newly diagnosed with cancer, (2) examine the nature of participants' requests for distress-related information, and (3) assess whether distress scores change following the provision of the program. Compared to no requests, participants who requested services reported significantly lower distress at follow-up. The e-distress screening and volunteer-based program received excellent ratings by participants and seems to be a promising and sustainable system to respond to cancer-related unmet needs. A randomized controlled trial is currently underway to test this new program at three hospital sites (please see ON-BOARD Study description for details).

Sponsors

PERSPECTIVE STUDY

Dr. Loiselle’s research lab joined Dr. Jacques Simard’s research team at l’Université Laval to take part in an international multisite study funded by Génome Québec that sought to improve prevention and screening for individual risk factors for breast cancer. As part of the PERSPECTIVE project (PErsonalised Risk Stratification for Prevention and Early deteCtion of breast cancer), Dr. Loiselle and the larger team evaluated a newly created website for women in the community to evaluate their perceptions and acceptability of genetic and lifestyle risk factors information related to preventing, screening and monitoring breast cancer risk.

Sponsors

HEALTH-RELATED EMPOWERMENT IN YOUNG ADULTS LIVING WITH ADVANCED CANCER: A QUALITATIVE STUDY

The goal of this exploratory study was to better understand how young adults living with advanced cancer strive to maintain a sense of control in the context of an uncertain future. In addition, barriers and facilitators to empowerment were investigated in the context of their cancer care. The study findings served to inform subsequent empowerment promoting strategies and interventions to best support this group of young individuals living with a precarious cancer diagnosis.

Sponsors

BEING KNOWN QUALITATIVE STUDY

Past research has focused on physician-patient communication related to delivering diagnoses, developing treatment plans, and discussing patients’ experiences with cancer. Less attention has been devoted to better understanding the nurse-patient relationship and how this may relate to the patient’s experience of 'being known" in health care. A better understanding of the patient’s perspective of "being known" will provide information on the added relevance of nurse-patient and nurse-nurse communication in cancer care settings. The overall goal of this study was to provide an in-depth exploration of cancer patients' experience of “being known” in an ambulatory cancer care setting where nursing rounds have been implemented.

PSYCHOSOCIAL ONCOLOGY RESEARCH TRAINING PROGRAM (PORT)


Dr. Loiselle was also the national Leader of a Strategic Training Initiative in Health Research called PORT (Psychosocial Oncology Research Training) - a 12-year CIHR-funded transdisciplinary training program for graduate students and postdoctoral fellows from a variety of disciplines pursuing research in cancer survivorship at six renowned Canadian universities.

TEN-C A RANDOMIZED CONTROLLED TRIAL


The internet is widely accessible and can be a very powerful tool for patients and their loved ones. In previous years, Dr. Loiselle and a team of researchers (Lauzier, S., Maunsell, E., Vuong, T., Lee, V., & Duschene, T.) conducted a large randomized controlled trial to study the effects of the Oncology Interactive NavigatorTM, a high quality Canadian web-based cancer resource (JackDigital.com). Now that data collection is completed, the team has been analyzing how this online tool affects patient’s experiences with cancer.

Sponsors

CIHR-FUNDED STUDY ON THE EFFECTS OF WEB-BASED CANCER NAVIGATION ON PSYCHOSOCIAL INDICATORS AND HEALTH CARE SERVICE USE

Dr. Loiselle has documented the effects of the Oncology Interactive NavigatorTM on health related outcomes in a multisite quasiexperimental study among 250 women and men newly diagnosed with cancer. Access to this multimedia cancer platform was shown to significantly increase patient satisfaction with cancer information and quality of life among a subset of patients.

Sponsors

VIRTUAL NAVIGATION IN CANCER: A PILOT STUDY

In May 2009, the Canadian Partnership Against Cancer commissioned a pilot study to understand how virtual navigation can support cancer patients. Specifically, the pilot evaluated the Oncology Interactive Navigator (OIN) tool in seven cancer centres across Canada.
For more information: http://www.deslibris.ca/ID/235207

Sponsors


Publications

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